For Marie Curie Cancer Care, from early 2011 until mid-2012, we designed and delivered the Young People and Transition programme, which aimed to improve services for young people with life-limiting conditions as they move into adulthood.
Along with other research, the programme showed that the system that is supposed to support young people with complex health needs and their families is, in reality, fragmented and ineffective. But this fragmentation can be prevented.
The programme brought together national and local organisations, and young people and their families, to learn from, and build on creative and effective ways of working together to create a smoother journey. Six innovative sites around the country tried out new ways of working across agencies including new technology, and a group of young people designed and ran a national small grants programme for their peers. Materials produced by the programme have been widely shared.
Work on the programme culminated in a major event on June 28, 2012, sponsored by Marie Curie Cancer Care, Together for Short Lives, Help the Hospices, and the National Council for Palliative Care.
Some of the creative outputs included; a design mentoring project on which one of the young participants co- produced a design collection of wheelchair user fashion accessories; a short play based on their stories read by the young people at the House of Lords; an art exhibition and an on- line games trailer based on the stories and the challenges faced.